YA Books with Disability Representation

Jessi

Did you know that March is Disability Awareness Month? Like many other people, I live with multiple invisibile disabilities. According to the Center for Disease Control (CDC), up to 1 in 4 or 26% of adults in the United States have some type of disability. Below are ten books (fiction and non-fiction) that center disability representation. 

FICTION:

1. Breathe and Count Back from Ten by Natalia Sylvester: Verónica, a Peruvian-American teen with hip dysplasia, auditions to become a mermaid at a Central Florida theme park in the summer before her senior year, all while figuring out her first real boyfriend and how to feel safe in her own body. Verónica has had many surgeries to manage her disability. The best form of rehabilitation is swimming, so she spends hours in the pool, but not just to strengthen her body. Her Florida town is home to Mermaid Cove, a kitschy underwater attraction where professional mermaids perform in giant tanks . . . and Verónica wants to audition. But her conservative Peruvian parents would never go for it. And they definitely would never let her be with Alex, her cute new neighbor.She decides it's time to seize control of her life, but her plans come crashing down when she learns her parents have been hiding the truth from her--the truth about her own body.

2. Love from A to Z by S.K. Ali: A marvel: something you find amazing. Even ordinary-amazing. Like potatoes--because they make French fries happen. Like the perfect fries Adam and his mom used to make together. An oddity: whatever gives you pause. Like the fact that there are hateful people in the world. Like Zayneb's teacher, who won't stop reminding the class how "bad" Muslims are. But Zayneb, the only Muslim in class, isn't bad. She's angry. When she gets suspended for confronting her teacher, and he begins investigating her activist friends, Zayneb heads to her aunt's house in Doha, Qatar, for an early start to spring break. Fueled by the guilt of getting her friends in trouble, she resolves to try out a newer, "nicer" version of herself in a place where no one knows her. Then her path crosses with Adam's. Since he got diagnosed with multiple sclerosis in November, Adam's stopped going to classes, intent, instead, on perfecting the making of things. Intent on keeping the memory of his mom alive for his little sister. Adam's also intent on keeping his diagnosis a secret from his grieving father. Alone, Adam and Zayneb are playing roles for others, keeping their real thoughts locked away in their journals. Until a marvel and an oddity occurs... Marvel: Adam and Zayneb meeting. Oddity: Adam and Zayneb meeting. 

3. One for All by Lillie Lainoff: Tania de Batz is most herself with a sword in her hand. Everyone in town thinks her near-constant dizziness makes her weak, nothing but "a sick girl." But Tania wants to be strong, independent, a fencer like her father--a former Musketeer and her greatest champion. Then Papa is brutally, mysteriously murdered. His dying wish? For Tania to attend finishing school. But L'Académie des Mariées, Tania realizes, is no finishing school. t's a secret training ground for new Musketeers: women who are socialites on the surface but strap daggers under their skirts, seduce men into giving up dangerous secrets, and protect France from downfall. And they don't shy away from a sword fight. With her newfound sisters at her side, Tania feels that she has a purpose, that she belongs. But then she meets Étienne, her target in uncovering a potential assassination plot. He's kind and charming, and he might have information about what really happened to her father. Torn between duty and dizzying emotion, Tania will have to decide where her loyalties lie ... or risk losing everything she's ever wanted.

4. The Summer of Bitter and Sweet by Jen Ferguson: Lou has enough confusion in front of her this summer. She'll be working in her family's ice-cream shack with her newly ex-boyfriend--whose kisses never made her feel desire, only discomfort--and her former best friend, King, who is back in their Canadian prairie town after disappearing three years ago without a word.But when she gets a letter from her biological father--a man she hoped would stay behind bars for the rest of his life--Lou immediately knows that she cannot meet him, no matter how much he insists.While King's friendship makes Lou feel safer and warmer than she would have thought possible, when her family's business comes under threat, she soon realizes that she can't ignore her father forever.

5. Unbroken: 13 Stories Starring Disabled Teens edited by Marieke Nijkamp: An anthology of stories in various genres, featuring disabled characters and written by disabled creators, ranging from established best selling authors to debut authors.

NON-FICTION

6. A Face for Picasso by Ariel Henley: There was danger in the kind of beauty I was desperate to achieve. At only eight months old, identical twin sisters Ariel and Zan Henley were diagnosed with Crouzon syndrome--a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous medical procedures to keep them alive. Doctors expanded the twins' skulls and broke bones to make room for their growing organs. After each surgery, the sisters felt like strangers to each other, unable to recognize themselves in the mirror. Their case attracted international attention. A French fashion magazine said Ariel and Zan "resembled the works of Picasso," as if they were abstract paintings, not girls just trying to survive. Later, plastic surgeons cut and trimmed and tugged their faces toward a tenuous aesthetic ideal. The girls dreamed of appearing "beautiful" but would settle for "normal." Fighting for acceptance was a daily chore. Between besting middle school bullies, becoming a cheerleader in high school, and finding her literary voice in college, Ariel learned to navigate a beauty-obsessed world with a facial disfigurement to become the woman she is today. 

7. Demystifying Disability: What to Know, What to Say, and How to Be an Ally by Emily Ladau: People with disabilities are the world’s largest minority, an estimated 15 percent of the global population. But many of us—disabled and nondisabled alike—don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including:
• How to appropriately think, talk, and ask about disability
• Recognizing and avoiding ableism (discrimination toward disabled people)
• Practicing good disability etiquette
• Ensuring accessibility becomes your standard practice, from everyday communication to planning special events
• Appreciating disability history and identity
• Identifying and speaking up about disability stereotypes in media

8. Disability Visibility. 17 First-person Stories for Today: Adapted for Young Adults edited by Alice Wong: According to the last census, one in five people in the United States lives with a disability. Some are visible, some are hidden-- but all are underrepresented in media and popular culture. Wong brings together an urgent, galvanizing collection of personal essays by contemporary disabled writers. Inside you will find activists, authors, lawyers, politicians, artists, and everyday people whose daily lives include the vast richness and complexity of the disabled experience. They invite readers to question their own assumptions and understandings, while documenting disability culture in the now. 

9. Queerly autistic : the ultimate guide for LGBTQIA+ teens on the spectrum by Erin Ekins: An inspiring survival guide for autistic LGBTQIA+ teens, sharing experience and advice oncoming out, consent, staying safe in relationships, communicating with family members, finding a community and practicing self-care.

10. Rolling warrior : the incredible, sometimes awkward, true story of a rebel girl on wheels who helped spark a revolution by Judith E Heumann: Judy Heumann was only 5 years old when she was first denied her right to attend school. Paralyzed from polio and raised by her Holocaust-surviving parents in New York City, Judy had a drive for equality that was instilled early in life. In this young readers’ edition of her acclaimed memoir, Being Heumann, Judy shares her journey of battling for equal access in an unequal world—from fighting to attend grade school after being described as a “fire hazard” because of her wheelchair, to suing the New York City school system for denying her a teacher’s license because of her disability. Judy went on to lead 150 disabled people in the longest sit-in protest in US history at the San Francisco Federal Building. Cut off from the outside world, the group slept on office floors, faced down bomb threats, and risked their lives to win the world’s attention and the first civil rights legislation for disabled people.

 

This blog post reflects the opinions of the author and does not necessarily represent the views of Brooklyn Public Library.

 

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